That is what I think - anyway. The doctor says he is pleased. Easy for him to say. Kenyon is MISERABLE. He feels pretty much as lousy as he has ever felt. Yesterday at our appointment, the doc diagnosed Kenyon with GVHD (graft vs host disease). They have told us all along that a little of that stuff is good. It tells us that the new marrow is doing its job. So we knew this could happen but we kept hoping it wouldn't. The GVHD has shown up in his liver, skin, gut and mouth. So, guess what that means??? More medicine. Kenyon loves getting more prescrips. Not. One of them requires him to swish medicine in his mouth for FIVE minutes 3x/day. The doctor says he should feel some relief quite quickly otherwise we will be getting another prescription for a steroid.
So, there you have it. Keep him in your prayers. He is hating it.
PS - I am mad at Huntsman. The dumb doctor told me that I can't bring Quinn anymore. Please. Snotty toddlers - OK. Tiny little babies that need their mom - Not OK. Ughhh.