Are we surprised? I told the PA today that Kenyon has always excelled at everything so, of course, he was a star patient. This is really the very earliest a patient could be released. We checked out of the hospital today at about 2 p.m. It felt so strange to pack up all his stuff and walk out of that hospital. Our neighbors had decorated the garage door and house with signs and balloons. We will head back up there to Huntsman a couple times a week but hopefully we can avoid any more hospital stays. Although it is not all that unusual to find yourself back up there with a fever or some other illness.
Kenyon is definitely tough but not all better. It will take a long time to build an immune system that is strong enough for him to be exposed to illness. Now that we are home, we just have to be as careful as we can.
A Home Health Nurse came today and taught me how flush his ports on his central line. I also learned how to run the infusion pump so that we can hook up a little extra fluids for him at night. There are also a lot of meds to keep track of but I think we will manage.
Kenyon has made himself at home tonight on the couch with some BYU vs REAL soccer. That is enough to make him pretty happy.
Kenyon is definitely tough but not all better. It will take a long time to build an immune system that is strong enough for him to be exposed to illness. Now that we are home, we just have to be as careful as we can.
A Home Health Nurse came today and taught me how flush his ports on his central line. I also learned how to run the infusion pump so that we can hook up a little extra fluids for him at night. There are also a lot of meds to keep track of but I think we will manage.
Kenyon has made himself at home tonight on the couch with some BYU vs REAL soccer. That is enough to make him pretty happy.
One last look at the contruction view outside Kenyon's window.
12 comments:
I wish that I was that home health nurse. I love that stuff. Ironically I talked to Brandon's Dr today and he gave me some great tips on how to get my nursing school paid for. So hopefully next year at this time I will start school again. So if there is ever anything too wierd or gross for you to handle, just call me and I will run right over.
Welcome Home Kenyon!
you're neighbors are so sweet! i hope things continue to go well.
xoxo
I can't believe it! This is fantastic news! A million congrats, and I'm sure he'll sleep soooo much better at home which will help him recover even faster. Hooray!
Amazing!!! What a blessing that Kenyon is home already. We are so happy for you. We are here for anything you need! The girl's won't stop asking me if your kids are home yet. I hope we can get them together while they're home for a few days! Have a great night's sleep with no loud bed sounds and no nurse interruptions.(maybe just nurse Annie)
WELCOME HOME!!!!! YAY!!! That is so great to hear. You will be a great nurse Annie.
Annie-that is wonderful. Good luck, you will do fine.
Congrats!! We sure think about you guys a lot. I'm not sure what this is like as an adult, but from watching what Jake goes through I can only imagine. You guys are so inspiring and are such great examples. We think about you every day.
Jeff
Yay!!! We are so glad to hear that Ken is home!! And you are right Ken always excels at every thing so why not be home as early as possible!! :) We love you Ken and Annie!!!
Phew! Another giant step towards "normal"! So glad that he is such a star patient, let me know what I can do to help! Love and prayers, S.
Welcome Home Kenyon!
Annie, congrats? I know you will do a great job. Forget that fact that we haven't seen eachother in forever, let me know if you need anything. I am an excellent shopper (and not just informercial stuff :))
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